Research

The International Consortium for FDMAS promotes of multi-stakeholder, collaborative, and patient-centric clinical, translational, and basic research.

If you are a researcher looking for collaboration or are you interested in one of our projects please contact us.

You can find a list of active science projects and medical trials in FD/MAS coordinated by consortium members or endorsed by the consortium over here. Of course there might be many interesting institutional projects as well, if you are willing to share your project please contact us with a small introduction and preferable a website we can refer people to.

Observational studies/Registries:

1. The European Registry for Rare Bone and Mineral Conditions
2. The Rare UnDiagnosed study (RUDY)
3. The FDMAS Alliance patient registry

Medical trials:

1. Clinicaltrials
2. European trial registry